Thursday, July 26, 2007

Human Rights Watch

Here are a couple excerpts from the HRW done in Russian orphanages in 1998. The whole thing is interesting but I'm posting just a bit.


"Type 2: Worst prospects for a child abandoned at birth and disabled

A baby born with physical or mental disabilities in Russia faces the worst prospects if he or she is abandoned at birth. Some of them have only physical disabilities, or minor mental retardation and could learn to walk and talk, read and write. Among these are children with mild Down syndrome, cerebral palsy, and correctable conditions such as club foot and cleft palate.

Numerous parents are routinely pressured at the maternity ward to give up such infants.32 After initial observation they are transferred to baby houses where the children classified with severe physical and mental disabilities are segregated into lying-down rooms. Confined to cribs, staring at the ceiling, these babies are fed and changed, but they are deprived of one-to-one attention and sensory stimulation and are not encouraged to walk or talk. However tentative their diagnosis of retardation was at birth, particularly for those who have only physical disabilities, it becomes self-fulfilling by the age of four.33

In the worst case, these babies fail the diagnostic evaluation of the Psychological-Medical-Pedagogical Commission at the age of four and are handed over to the Labor and Social Development Ministry. There they are interned in closed internaty for imbetsily and idioty, where there is little more than a perfunctory classroom to keep some of the children busy for a few hours a week.

The bedridden children from the baby houses are again confined to cots in lying-down rooms, often laid out on bare rubber mattress covers, unclothed fromthe waist down and incontinent, as we witnessed in one internat and heard in credible reports from volunteers working in many state institutions.34

Human Rights Watch saw children who were considered “too active” or “too difficult” being confined to dark or barren rooms with barely a place to sit. The staff tethered them by a limb if they believed they might try to escape, and restrained others in makeshift straitjackets made of dingy cotton sacks pulled over the torso and drawn at the waist and neck.35

Children with Down syndrome and other hereditary conditions are regularly passed over for corrective-heart surgery that is routine in the West, based on a long-held bias against spending medical resources on children judged as "socially useless."36

The orphans who survive to the age of eighteen move on to an adult internat, again removed from public view. Some, however, are housed in huge centers with hundreds of handicapped people across the age spectrum and where older inmates feed and care for younger or more disabled ones.

Variations on these cases

There are scores of variations on the two types of journeys followed by Russian orphans. For instance, some children are abandoned after living several years at home. As one baby house director told Human Rights Watch, this can occur in the case of severe disability, when a family struggles for a while to raise their child themselves:

If the mother decides to keep the child, after three years, maybe, she loses her job. The state subsdidies are minimal. The man might leave her. While the child weighs under twenty-two pounds, she can carry him. But then the baby grows, more care is needed and she has less money, and her physical and moral strength is getting weaker. We know instances where those cases will be found locked in a dark room in an apartment, because the mother had to goto work to feed her children, because the monthly pension for having a disabled child is really miserable—200,000 rubles (U.S. $30).37

Not all variations are so bleak. Volunteers and child development specialists in Russia told us about an increasing number of children who are being kept an extra year or two in the baby houses in order to improve their chances of passing the commission evaluation and avoid banishment to a psychoneurological internat. In addition, not all the children in baby houses are neglected equally, as certain children have winning personalities or attractive characteristics that encourage the staff to devote more attention to them.38

Finally, all children have their individual constitutions, which miraculously navigate some of them through the harshest circumstances, and help them not only to survive, but thrive.


[**This one really hit home. It is so true!!**:]
Reminiscent of the peculiar practice in Romanian orphanages to display newly acquired developmental toys in places only accessible to the staff, the staff of the Moscow baby house called our attention to their bright array of Montessori toys stacked in the glass cabinet just inside the play room. They stopped our tour briefly to demonstrate how the toys worked, and then put them back and closed the cabinet door."


There is so much more but I can't put it all here. I encourage you to go to the website and read the report. This needs to become more widespread and people need to be aware!! http://hrw.org/reports98/russia2/Russ98d-03.htm#P483_60775

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